Thursday, February 19, 2009

Waiting for a Miracle


Nathan had a stroke at birth, developed intractable seizures and had a right functional hemispherectomy (brain surgery) at 14 months old. Soon, my baby will be 4 years old!

I have always known that Nathan understands every word I say (and I do mean "every"). But Nathan has struggled to work his way up to having about 10 words. Along the way, he's learned some American Sign Language signs, made up a ton of his own signs and gestures, and mastered a series of picture communication devices. And now we're waiting for delivery of his new VantageLite, a dynamic communication device with voice output. We do all of this because Nathan desperately wants to communicate his needs and wants, and loves to interact with other people! For me, it was going to be okay if Nathan never spoke, as long as I could get him a computerized device that could help him independently express his wants, dreams, jokes and fears! And I felt like we were on our way to achieving that goal.

Suddenly, within the last eight weeks, Nathan's ten-word vocabulary has exploded to hundreds of words! Maybe thousands! He talks about everything. He repeats words when asked! Yesterday, he focused and had fun at speech therapy! He asks 4- and 5-word questions -- mostly Why?! Strangers comment on how patient I am answering all those Why? questions. But, I just rejoice inside every time I hear one! This has just reminded me once again, that Nathan operates on Nathan's timeline...and God's timeline...not a doctor's, not a therapist's, not a book's, not mine...just on his own, and the rest of us just have to be patient and wait.

Thank you for letting me share.
Nathan's Mom

4 comments:

  1. He never give us more than we can bear. He chose wisely when he gave you the gift of patience! Your children are beautiful!

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  2. How thrilling i must be to hear your son speaking to you! It brought tears to my eyes to read about it.

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  3. Praise God!! I'm rejoicing with you over this vistory...

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  4. My son Kaleb never spoke until he was 4 either.I had a speech patholigist at 2 1/2yrs and we figured he wasn't going to speak.We also introduced sign language. On his 4th birthday he said his name for the first time!Then it just started rolling out 2 word 3 word 4 word sentences!Now he is 9 and I still can't get enough of his voice!Don't settle, encourage!

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